October 28, 2007

Josh is now 12 pounds! He has doubled his discharge weight. For most of the day now, he is off oxygen. We put him on for a few hours in the evening and he goes to bed with it on, but he removes it sometime while he is sleeping, probably as soon as I close my eyes and am not looking! The pulmonologist is going to do an overnight study probably the week after next to see how he does at night with no oxygen and then we will be able to take him off completely. This will be a MAJOR hurdle! We go to see the GI doc on Tuesday and will talk to her about taking Josh off the extra calories (if she feels it's appropriate), adjust his reflux meds and whatever else needs to be changed.

I know that some still read occasionally and there is a woman on one of my message boards who is going to need lots of prayers. She had her little one at 25 weeks. She is 1 lb 10 oz and her name is Sydney. Niki and Brian are mommy and daddy. So far she is doing remarkably well and we hope that trend continues. Keep them in your prayers for a uneventful NICU journey.

I will post some pictures later today.

Love and hugs to all!

Updates - 8 months old

Josh got weighed on Friday... he was 10 lbs 15.5 oz... almost 11 pounds. Who would have believed it! He has had OT a few times and is doing good. Still a bit behind I guess but doing most things age appropriate (for his adjusted age). Here are some pics again. I will take some more today since he is officially 8 months old! Look at those chunky thighs!

Double digits

Josh got weighed on Friday and he was a whopping 10 pounds even! As we have said before, we are thrilled with his progress. We are slowly weaning him off his oxygen. A few hours a day and he is doing fine. As long as he keeps gaining, we may be totally off by Thanksgiving.

Fall is here and in the next few weeks we will become hermits. No public places for the little guy until the end of RSV season. We will be screening visitors. If anyone is sick or even has a sick one in the family it's no visit. We don't want any admissions back to the hospital. It was a one-way ticket out of there! As much as he is looking wonderful and behaving like a perfectly normal full termer, the fact is, he isn't, and we have to be dilligent still in keeping those nasty germs away. Have a great night and we will keep you all posted. I will have some new pics soon.

Dianna