Josh is now 12 pounds! He has doubled his discharge weight. For most of the day now, he is off oxygen. We put him on for a few hours in the evening and he goes to bed with it on, but he removes it sometime while he is sleeping, probably as soon as I close my eyes and am not looking! The pulmonologist is going to do an overnight study probably the week after next to see how he does at night with no oxygen and then we will be able to take him off completely. This will be a MAJOR hurdle! We go to see the GI doc on Tuesday and will talk to her about taking Josh off the extra calories (if she feels it's appropriate), adjust his reflux meds and whatever else needs to be changed.
I know that some still read occasionally and there is a woman on one of my message boards who is going to need lots of prayers. She had her little one at 25 weeks. She is 1 lb 10 oz and her name is Sydney. Niki and Brian are mommy and daddy. So far she is doing remarkably well and we hope that trend continues. Keep them in your prayers for a uneventful NICU journey.
I will post some pictures later today.
Love and hugs to all!
3 comments:
1 lb in two weeks! That's awesome! He's soo cute and chunky.
It's great to see Joshua is doing well. I read up on your progress once a week and am very happy for you all.
Hi! I just stumbled across your blog, and find that we have similar stories! Your son is darling. We will keep you in our thoughts and prayers. Our son, Alden, was born at 26 weeks, 1 day and was 2.2 lbs. He is about 1 month younger that Joshua. If you like, check out his journey at:
www.aldensstory.blogspot.com
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