Opthalmologist Visit

It's amazing that these doctors can tell things just by looking. She said that Josh has astigmatism in both eyes. After reading the above article, I will have more questions in April when we see her. She also said that Josh's right eye drifts a little, which is the reason that she wants to see him back in three months. If the drifting gets worse, she will have to prescribe a patch over his left eye to strengthen the right one. All in all decent news. Will Josh have to wear glasses? My guess is eventually, although she didn't say so today. That is definitely going to be one of my questions next time. I have astigmatism in both of my eyes as well. That is probably the reason that I have worn glasses since the age of 5. So one more doctor that we get to see routinely!

Preemie Follow-up visit

Josh went to his Preemie follow-up visit. Yale does two, one at 6-months adjusted and one at 18. The great news was that the "test" was performed by one of our favorite fellows Yesid. It was great to see her. They did a series of tests with toys to see where he is developmentally. It is mostly a study to see how preemies do after they get home. Josh is on track socially (go figure LOL) and a bit behind even his adjusted age for gross motor, fine motor and cognitive. Basically when most babies are reaching certain milestones, Josh was busy just trying to grow/breathe/live. They do believe that eventually (sometime before age 2-5) he will have caught up totally so that is good news.

We have he pedi opthalmologist on Thursday. Hopefully that will go well!

Jan 19 Pictures

Here are some more pictures for you. I know that you like these best!

January 19, 2008

Last weigh in he was 15 lbs 11 oz. He is still not on the charts, but he is getting there!

We have lots of appointments coming up. We have a first appointment with a pediatric opthalmologist. Hopefully that will go well. He doesn't see the eye surgeon again until May. We have GI again this week. She is just working on his weight pretty much. We have an appointment next week with Yale. They have a preemie follow-up clinic. It's about an hour and a half with a bunch of specialists I think who will go over his health and development and see where he is. We know he is behind in lots of things but I am not worried. He will catch up. I can see by his actions that he is going to be just fine! My insurance has now denied his home nurse visits. They say it's because he isn't homebound... okay he never was! Pediatrician is appealing that decision, but so far, no change. Sucks because she was weighing him every 2 weeks and giving him his synagis shot. Now we will have to go into the office and be exposed to even more germs. Do they even realize what that means?

So that is all that is going on. I have some more pics that I will post as soon as I get rid of the red eye!

Love to all.

Picture

11 months old today

Wow, can you believe it. In one month our little man will be a year old. He is thriving and doing so well. We have so much to be thankful for. Although his lungs are still fragile, he still has moderate Chronic lung disease and is dealing with GERD, we know he is doing well. We still have a long way to go. He is still delayed developmentally. He is not rolling over like he should (he does it when he feels like it!). He is a little behind even his adjusted age, but I am not worried. I know that he will catch up!

Josh has had two colds or something viral. The last one had us giving him breathing treatments every few hours to help with his cough/breathing. Luckily both times have been mild. Thank goodness for the Synagis shots (this shot is basically giving him some immunity against RSV. It's not a vaccine, but an immune booster). He gets the shot once a month to protect him. I am sure that was part of why although he has gotten something, he hasn't gotten really sick.

I have to type this part all over because Josh somehow grabbed my mouse and deleted the below passage! Little booger!

There are two preemie mama's/daddy's out there who could use some prayers. Ana and Joe had a 25 week old little boy Jay who is 5.5 weeks old. He is still on the vent and hopefully will be weaned soon and get on CPAP. He is a little fighter! http://schmetzers.blogspot.com/

Niki and Brian have Sydney who is now almost 2 and a half months old. She is just getting over an RSV infection and is doing really well. She is almost on the road home soon. I am sure her mama and daddy would love for some prayers to send the little one home! http://sydneysjourney.blogspot.com/

As soon as I get some I will post some new pictures. He is such a cutie blowing raspberries and babbling away!

I hope you all had a wonderful new Year. We are hopeful that 2008 will be a great one for us!