Day 114

I have been slacking and not updating the blog nightly. Sorry guys! Perhaps in the back of my mind I am "weaning" you all, since very soon, I won't have as much time to update. I will still, as Josh will still be facing challenges and milestones that I want to share with you all, but it won't be daily.

We got the news that he will most likely be coming home sometime next week (perhaps Tuesday). We had hoped awhile back that he might be home before Father's Day (what a gift!), and they weren't hopeful at that time that it could happen. He is doing very well, and they are starting to make the preparations for him to come home. He will be on many meds for awhile, 2 diuretics (to get rid of extra fluid), two vitamins (one of which is specifically for the cholestasis, which is the jaundice caused by the IV nutrition he was on). He will also be on another medicine to get rid of some of the bilirubin, plus sodium and potassium to make up what the diuretic depletes. He will come home on oxygen. This could be for 2 weeks, 2 months or 2 years, there is no way for us to know how long he will be on it. There will be frequent trips back to Yale to see the eye doctor, the surgeon, and the pulmonary team (for his lungs), unless they can find a pediatric pulmonary team in New London. The eye doctor is pleased with his progress. She will continue to see him about once a month for 8 months and then he will see a pediatric ophthalmologist . I finally decided to continue with our regular pediatricians as they are closer and after talking with them, they have had some preemie experience. If I decide later that I am not comfortable, we will switch then.

We had to get all of the stuff that we didn't get at the shower yesterday. What a fun shopping day! We were still in need of most of the large items, his crib/mattress and changing table, carseat and stroller, etc. I had lots of coupons and some gift cards to help out in the expense but most of it is done. I can't say that it will be my last trip to Babies R Us, but I can say it won't ever be that expensive again!

Dave is painting his room today and then it will be ready to decorate. He will be in our room for at least a month in a bassinette. I do want to be able to get all of the boxes out of my living room!

So there you have it. The update. We will continue to update in the next few days and let you know when the official date is of his homecoming! Love to you all!