Day 115

Well the excitement was short-lived. They had talked about Tuesday, now they are concerned about his poor weight gain (he hasn't really gained any weight in a few weeks). I am not sure if, or what they are doing there to fix this. They are already adding formula to his breastmilk to boost the calories. For some reason they DC'd the MCT (this is Medium Triglyceride Chain - a fat) . We know he will be coming home on oxygen and many meds. I think part of the problem is that he is getting his meds via his breastmilk. Most of them are NASTY and he chokes down the 10cc's and is then reluctant to drink any more. He has been doing 45-60 cc's every 3 hours despite this. I have tried to breastfeed, and right now this is hit or miss. If he doesn't take it in the first few minutes, I try a bottle because I don't want him to expend too much energy and burn calories that he so desperately needs. We got his prescriptions filled for home and the pharmacy can flavor some of them so that they are more palatable so hopefully that will help when he gets home, but I want him to gain some weight while in the NICU so that he can actually get here! So we wait for him to gain some weight. Hopefully they will figure out something to help this along. This is the only thing preventing him from coming home. We don't want him to come home until he is ready, but I hate the wait after all the excitement!